Coming out as a person with E. has it's problems... In the first place, E. is invisible-in the second place, E. has been so highly stigmatized for so many centuries that coming out can present real problems for those of us to choose to do so. Finally, self-identification as "disabled" is often ignored or suspected by others, even from within the "disability community" to which many of us want to belong.
Back in the day I had a doctor who would not give me a Rx for my seizure control medication. said I had to prove I needed it. Hello. I went maybe two or three months with no problem and then one night had a nocturnal grandmal. Went to the doctor and opened my mouth displaying all the bite marks in the tongue and cheek and asked him could I please have my Rx now?? He said yes but he had to turn it in to the DMV. I politely told him my seizure was due to his neglect and refusal to give me my Rx and if he saw fit to turn it in to the DMV then be prepared to hire a driver for me while I could not drive. He decided giving me my Rx was all he needed to do. I told him I thought so. Yes you see doctors who talk like that but sign a release and tell him to get copies of the old tests and if they are too old then they can be repeated but if new enough it would not be necessary. If you are talking about blood levels I remember being tested every month for the first year I was on my medications. I got monthly blood tests. Kept me controlled after they got everything regulated perfectly for the next 18 years.