March 17, 2010

A Purple World is a Better, Friendlier World!

When Cassidy Megan was nine, she wanted to do something fantastic for folks with epilepsy. She knows first-hand what E. is like, because she shares epilepsy with the rest of us. She knows how lonely having E. can make you.

In the U.S., we all know that November is Epilepsy Awareness Month, but having a day in springtime to elicit support is a wonderful thing.

Spring is the time when the buds open, warmer rains fall, and life begins anew... it is also a time when we can open up to others and show them we support them in their lives.

Perhaps the sight of hundreds of people wearing purple is a kind of emotional jolt to those of us with E. who understand it's meaning. The notion that so many others are willing to help us out of the closet and welcome us into society as we are is a most generous way of giving.

By offering to us even a silent but deliberate show of support, many of us can stand a little taller and breathe a little easier. It is as if the whole world has come out for a day to say "we are all your friends".

Thanks, Cassidy, for having such a good idea and sharing it with the rest of us. Because of you and all those willing to wear Purple for a Day we can say that a Purple World is a Better World!
It brings us all closer to one another.

4 comments:

Daphne Ling said...

Hi Paula,

I was writing my paper on sexuality and epilepsy and came across your blog (and incidentally, I blogged about purple day recently). Your post "You know you have E. when" had me in stitches!

Sorry, I don't mean to laugh at you or anyone who has epilepsy or anything...It was just hilarious!

Kudos on you for having such a sense of humour! ;)

Alyssa said...

Hi Paula,

Another beautiful and inspirational posting by yourself. I have been reading your blog recently as a way to inspire me for my own, DisCo: Disability Conversations http://discodisabilityconversations.blogspot.com/. This blog is basically a collection point for all things disability, I am trying to find some amazing bloggers to give their words, experiences and advice to the greater disability community. I was wondering if you would be interested in having an about you piece on the blog and some content about your experiences and about your own blog - you are an inspiration and it would be great if everyone had access to your words.

Alyssa

Ronald Scott said...

Cousin Paula:I KNOW WHAT YOU'RE TALKING ABOUT WHEN YOU SAY THAT PERHAPS IF LYNNE'S LIFE COULD BE SACRIFICED,YOU'D BE CURED!PEOPLE HAVE NO COMMON SENSE WHEN IT COMES TO THINGS OF THAT NATURE!I'VE HAD THE FEELINGS YOU TELL THAT YOU SUFFER. IF YOU'D JUST OBEY YOUR DOCTOR,YOU'D BE BETTER!ONLY TAKE THIS MEDICATION AND IT WILL COMPLETELY HEAL YOU!I'VE HEARD EVERY ANGLE FROM BEING TOO FAT,LOOSE WEIGHT AND YOU'LL DRASTICALLY IMPROVE!DO THIS AND THAT YOU FAT THING, AND YOU'LL BE SO MUCH BETTER!WHEN YOU AND THE DR. BOTH KNOW THAT THE FINAL ANSWER WILL BE SURGERY!THEY TELL YOU WHAT THEY THINKYOU WANT TO HEAR!TO GIVE UP ONE DEAR LIFE,EVEN SOMETIMES YOUR OWN,IS NOT "FIGHTING THE GOOD FIGHT' it's giving up before you getstarted!the bible says,'HE WHO FIGHTS THE GOOD FIGHT WILL WEAR A CROWN IN HEAVEN" BE FAITHFUL WEARY PILGRIM! THESE DOCTORS TODAY WOULDN'T KNOW WHAT TO DOIF THEY DIDN'T HAVE THE PHARMACEUTICAL CO'S PAYING THEM KICK BACKS TO SUBSCRIBE ABOUT A DOZEN PILLS, TO US, AND THEY DON'T EVEN KNOW IF THEY WORK OR NOT, JUST EXPERIMENTAL. WELL I'VE SAID MY PIECE.JUST WANTED YOU TO KNOW THAT PART YOU WROTE YOURSELF WAS MIGHTY FINE EXPOSITION! WITH ALL MY LOVE, COUSIN RONNIE

ToteMan said...

Please see my website for my Epilepsy Awareness Comic Book. There are free downloads of the comic. Lets help spread Epilepsy Awareness to children. Please pass this along and possibly make an entry of this. As Epilepsy Awareness month is approaching this would be a great entry for the blog. I have worked with the Epilepsy Foundation of America and othe Epilepsy Foundations in the United States.
www.toteman.net