tag:blogger.com,1999:blog-31984317.post5029257775453515707..comments2023-09-15T08:34:17.656-07:00Comments on E. is for Epilepsy by Paula Apodaca: Humiliation: Some Field Notes from the EdgePaula Apodacahttp://www.blogger.com/profile/01073660379696929072noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-31984317.post-52756981072280692892008-03-16T10:24:00.000-07:002008-03-16T10:24:00.000-07:00I have never read a more sensable approach to this...I have never read a more sensable approach to this problem! After reading the comment by Diane J. Standiford, that you should be measured by more than just intervals between seizures. That was the clencher of the statement best suited for all people with E.Paula, I truly believe that she struck upon "The Light at the End of the Tunnel"! Paula, people with E aren't just pieces of meat to be thrown to the dogs, but human beings, many with great intelligence and truly very good minds to be functional human beings, with feelings, and needs just like any person without E! Certainly not people who should be institutionalized or shoved off in an obscure corner of the world, as if they had leprosy etc. and placed into a colony all to themselves to live. Keep up the good writing, as the thoughts comming from your mind and going down on paper certainly are not just idle chit chat! With Love-Cousin Ronnie from Iowarondy1947https://www.blogger.com/profile/00052854521754635148noreply@blogger.comtag:blogger.com,1999:blog-31984317.post-4177699580528345362008-02-11T00:25:00.000-08:002008-02-11T00:25:00.000-08:00Sometimes it seems that others perceptions of our ...Sometimes it seems that others perceptions of our illness is worse than the disease! You are YOU. No matter what an test ever shows, all you can ever be is the best you. If people don't get that, then it is their problem--don't let them make it YOUR problem. If you can:"Strong at the Broken Places" a book by Richard M Cohen discusses just this issue. You deserve to be measured by more than intervals between seizures.Diane J Standifordhttps://www.blogger.com/profile/11862850657925658079noreply@blogger.com