tag:blogger.com,1999:blog-31984317.post5247930128728132685..comments2023-09-15T08:34:17.656-07:00Comments on E. is for Epilepsy by Paula Apodaca: Life, Death and the Long Haul with E.Paula Apodacahttp://www.blogger.com/profile/01073660379696929072noreply@blogger.comBlogger1125tag:blogger.com,1999:blog-31984317.post-68486547118471779342009-04-09T11:34:00.000-07:002009-04-09T11:34:00.000-07:00Paula, I lost my brother to SUDEP (Sudden Unexpect...Paula, I lost my brother to SUDEP (Sudden Unexpected, Unexplained Death due to Epilepsy) about a week before the Travoltas' son passed away. I try to advocate and bring awareness to Epilepsy and think it is important that others do the same. I agree with you that Epilepsy needs a face to become more publicly recognized. I do not think that people with Epilepsy bring any sort of burden on society but that society burdens those living with Epilepsy by not knowing and being more understanding to those who live with Epilepsy. I find it so unfortunate that people are discriminated against and not treated fairly for something they were so often born into. My brother was kicked off buses, kicked out of college and fired from jobs because of peoples' lack of compassion for something that was completely out of his control. I don't know what we can do to bring awareness and compassion to those living with Epilepsy, but if you find a way, I will support you 100%. The best way I know to reach American society is through the media. So, after the Travoltas' tragedy I wrote to Oprah with my story and about the importance of seizing the moment to shed light and bring awareness; but to no avail. Thank you for all you do to bring awareness and compassion! I blogged for a couple weeks after my brother's death and found it helped me. (blogspot.inmemoryofjayveynaiii.com) I hope to find the strength to continue to blog about him and his experiences through my eyes. Right now it's just too difficult. Again, thank you and keep up the wonderful work!<BR/>Adrienne VeynaAdriennehttps://www.blogger.com/profile/15873238875922703655noreply@blogger.com