How much can a head of hair weigh? Is it enough to cause your neck from being able to hold your head up straight? I have heard that hair can weigh from .5 to 3.0 ounces an inch--- how heavy is that, really?
May 8, 2009
May 7, 2009
Illness personal narratives are, by their nature, sad, grim tales told by sufferers. Being around those who suffer can be nearly as unbearable as the actual suffering itself. Even reading about suffering can take its toll. So, in an effort to keep the dialogue going about E. without causing my readers to suffer too deeply, I offer a glimpse into one of the human being’s best coping strategies: humor.
Do people with E. have a sense of humor about themselves? Yes. Do we use it to give ourselves a break from our own illness experiences? Absolutely.
Humor specific to a topic or activity, it relates to experiences we share through E. and it offers the same value all humor offers: insight.
You know you have epilepsy when there are two cars in the driveway and you don’t drive.
You know you have E. when...someone asks you if you're alright & you didn't know anything was wrong.
You know you have epilepsy when you find yourself eating lunch for the second time in a row.
You know you have epilepsy when your dentist worries about losing his fingers...
You know you have epilepsy when you can decipher the following: I was dx'd with JME by my epi with an EEG, (had MRI and CT), Rx was Lamictal 100 mg p.o. tid, which controlled the jerks, absence, SP's, atonics, and GTC's...
You know you have epilepsy when holy water burns you.
You know you have epilepsy when your roommate doesn't know whether to call 911 or a Priest.
You know you have epilepsy when your Meds cost more than you make in a month.
You know you have epilepsy when you take meds to help the meds you take.
You know you have epilepsy when upon having a burst of energy you're asked "are you having a episode?"
You know you have epilepsy when...you have a seizure in your sleep and smack your spouse...and they ask ...was that a spell or are you still mad at me ?
You know you have epilepsy when...Sleeping till 3:00 pm is normal...yet not sleeping at all is too.
You know you have epilepsy when you hear ten times a day from your loved ones…did you remember your "pills"
You know you have epilepsy when your significant other pats himself on the back for his prowess that night and you have no recollection for the event...
May 1, 2009
A mother is seeking to have the womb of her severely disabled daughter removed to prevent the 15-year-old from feeling the pain and discomfort of menstruation.
Doctors in Britain are now taking legal advice to see if they are permitted to carry out the hysterectomy on Katie Thorpe, who suffers from cerebral palsy.
But a charity campaigning for the disabled said on Monday the move could infringe human rights and would set a "disturbing precedent."
Andy Rickell, executive director of disability charity Scope, told the Press Association: "It is very difficult to see how this kind of invasive surgery, which is not medically necessary and which will be very painful and traumatic, can be in Katie's best interests.
"This case raises fundamental ethical issues about the way our society treats disabled people and the respect we have for disabled people's human and reproductive rights.
"If this enforced sterilization is approved, it will have disturbing implications for young disabled girls across Britain."
How do we feel about disabled sex and reproduction? As a society, there are those who have strong feelings against disabled sex and reproduction. I know as a woman with E., I was warned all my life that I would never be able to have children and that I should never have children.
To my mind, the warning could have been more distinctly articulated: something more like: don't have children unless you can care for them, unless you are married or have employment or the like. The same kinds of warnings parents make to their non disabled kids.
Certainly, I have taken this piece a little far afield, but I guess my point is still a simple one: I am happy to be alive and I don't want to be engineered out of existence, by anyone.
If the day ever comes when someone wants to know whether to let me die "with dignity" or continue living my "blighted life", what I "would want for myself" is to be left alive--- I must say that I am, under no circumstances, in favor of euthanasia, nor would I ever sign a DNR for myself. Too many people have been too anxious for too long to get rid of us to ever let me see "mercy killing" as an option.
I plan to live to be at least 112 years of age, blight and all.