The involuntary scream, the rolled back eyes, the sensation that I am under water, that I may not be able to break back into consciousness again...
I have been epileptic for 65 years now. I have lived in fear, shame and self-doubt. I have learned to push back to make room for a life, with some of the ordinary comforts and joys life can bring. Our lives are gifts. But we are responsible for living them. I promote speaking and writing about E. We can all make a difference so keep reading...
Saturday, March 15, 2008
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A Scent of Angels: Falling into a Tonic Clonic Seizure
First, comes the scent---the Angels are present. Next comes the fall, and I feel a brushing of wings, growing stronger, more intense until ...
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Some of us take a single AED for our condition. Others of us take more than a single drug. Many of us have been warned about the serious sid...
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We hear the term “controlled epileptic” and we think of a person with epilepsy who only needs to take his medicine as he has been told to do...
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E. is a heavy label to live with. The culture surrounding it is one of silence and misdirection. It suggests that there is something about ...
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To the right is a painting by Evelyn de Morgan from 1916. It is her commentary of Death on the battlefield. Double-click the image to see it...
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It is not an easy thing to talk about one'’s family. Conflicts abound and committing fact to paper seems to fall short of the true exper...
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How much can a head of hair weigh? Is it enough to cause your neck from being able to hold your head up straight? I have heard that hair ca...
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When I went searching for images of pain and suffering online, I was surprised to see that many of those images had to do with tear...
1 comment:
Thanks for sharing that - doesn't sound like fun. I don't have TCs but my experience of coming out of a blackout is less... harrowing. Like floating in a black scintillating cosmos. Disconnected from body and thoughts it is actually not unpleasant, rather like touching base consciousness. My first thought, first time it happened, was,"am I dead?" It took some mental effort to reconnect the neural pathways. Maybe one day I'll just float off. It doesn't scare me.
all the best
rych
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