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About mrspaula
- Paula Apodaca
- California, United States
- I have been a person with E. for over 50 years. My experiences and observations are my own. I hope to encourage a larger, more diverse dialogue to take place among ourselves as persons with epilepsy, and the general society. I believe it is time for a change in the way we see ourselves and our place in the world. I also believe that we are the only ones who can accomplish such a change.
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3 comments:
Hi Paula,
Many of these things I've heard before. Some of them I have not. I especially don't like the comment about how I get something out of being "sick".
However, sometimes I think "suck it up." I sucked it up, I got out of bed, and I got a job. I don't think its right to feel that way, but I do.
Rob
I also sucked it up, and after getting fired at work for having a seizure, I tried to get another job, and now I'm a dishwasher at a rest home. It's a third of the salary. I didn't have to reveal that I had epilepsy, but working in a kitchen with open flames and knives, I thought it best to be sure they knew. That dropped my salary by two-thirds. And "they say" it doesn't matter. It does, and it sucks sometimes. I used to work in television and they never knew, until I had a grand mal. It was all over then. They also let my husband go and 5 other employees that backed me up and tried to defend me. They said "we looked up your condition on the internet and it doesn't exist, therefore, it doesn't exist."
I think I should also say that I have a job at an epilepsy foundation so I'm relatively safe, although you never know for sure. I have had plenty of disappointments in my working career. Some were created by myself but most, I think, had to do with my epilepsy. Had seizures, admitted I had epilepsy, needed accommodations, etc. So its really not fair to say I "sucked it up" without mentioning those things. But, still, I need to work on changing my opinion of others who I say should just suck it up.
Rob
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